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PMR Dosages and Managing Symptoms
Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)Comment receiving replies
I have an appointment with my PCP on MOnday, and I"m hoping she can either suggest a different rheumatologist, or convince me to stay put for awhile. It amazes me - I had never heard of PMR until I was diagnosed with it. I've seen two doctors - my PCP and my rheumy regarding this disease I have, and both of them talk and act as though I should be an expert in this matter. No direction!! I've never seen anything like this. Thank you for your encouragement!
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Hang in there. It’s a wild ride for sure. Connecting with an MD who asked more than than she me, really helped me come to terms with PMR. The good ones know that ultimately you need to manage your own symptoms (wrt prednisone in particular) and they offer therapies and advice to keep you safe and moving forward.
Finding this blog of folks on the same rollercoaster was a lifesaver for me. Emotionally and physically.
Someone here also recommended this blog - I really love the description that differentiates withdrawal versus flair and the strategy for tapering - it’s not a race to zero. the goal is getting to the lowest dose that gives you good quality of life! https://healthunlocked.com/pmrgcauk/posts/146051123/steroid-withdrawal-or-a-flare?responses=146051123