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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
Hi it is a struggle to find docs locally that support/agree/understand that Sjogrens is a disease (not a little dryness), that you can be seronegative, and that it can cause SFN/POTS/dysautonomia/bone-jt-muscle pain. I joined the Sjogren's foundation, follow Sjogren's Advocate, and now Mayo Connect in hopes of learning about my disease and staying current with the research. Thank you for the warm welcome!
Replies to "Hi it is a struggle to find docs locally that support/agree/understand that Sjogrens is a disease..."
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@lilymol If you like doing research, have you tried ‘google scholar’? It’s a more in-depth search engine. You might also be interested in some information @athenalee found on Sjögren’s syndrome:
https://connect.mayoclinic.org/comment/664360/
Would you mind sharing the web addresses for Sjogren’s Foundation and Advocate? They would be great to have for others just joining Mayo Connect!