← Return to Sjogren’s Syndrome – Introduce yourself and meet others

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@lilymol

Hi it is a struggle to find docs locally that support/agree/understand that Sjogrens is a disease (not a little dryness), that you can be seronegative, and that it can cause SFN/POTS/dysautonomia/bone-jt-muscle pain. I joined the Sjogren's foundation, follow Sjogren's Advocate, and now Mayo Connect in hopes of learning about my disease and staying current with the research. Thank you for the warm welcome!

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Replies to "Hi it is a struggle to find docs locally that support/agree/understand that Sjogrens is a disease..."

@lilymol If you like doing research, have you tried ‘google scholar’? It’s a more in-depth search engine. You might also be interested in some information @athenalee found on Sjögren’s syndrome:
https://connect.mayoclinic.org/comment/664360/
Would you mind sharing the web addresses for Sjogren’s Foundation and Advocate? They would be great to have for others just joining Mayo Connect!