← Return to Sjogren’s Syndrome – Introduce yourself and meet others

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@lilymol

GM, I too have Sjogren's as a result of an infection late 2018. I'm seronegative and had a neurological presentation first with dryness later so getting diagnosed was a challenge. Finally was able to get to Mayo and they recognized my symptoms and did testing which other docs would not because of my seronegative status. So had positive lip biopsy, positive tilt table, positive punch biopsy for small fiber neuropathy, and the list goes no. It is a difficult disease to live with at least for me. Getting to a major medical center is my best advice for someone having difficulty getting diagnosed. Just wanted to introduce myself and say hello:)

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Replies to "GM, I too have Sjogren's as a result of an infection late 2018. I'm seronegative and..."

And hello to you, @lilymol ! I’m so glad you were able to get to Mayo for a proper diagnosis. And i really agree with going to a major medical center. That’s what i had to do. None of the local doctors knew what i had or how to treat it, so I went to the university hospital and the doctors there knew exactly what to do. Yea!
Do you find that your local doctors are willing to follow Mayo’s plan of care?
I hope you’ll stick around and help others who are fighting sjogrens!

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