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Healthy with MAC: What's your follow up like?

MAC & Bronchiectasis | Last Active: Feb 14, 2022 | Replies (38)

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@bee1950

I was diagnosed over 4 yrs ago with bronchiectasis & MAC after landing in the ER due to hemoptysis. I switched from a Medicare advantage plan to a supplemental plan to insure that I could go to the medical provider of my choosing. Obviously it is more expensive monthly but I have had no copays for doctors, procedures, or scans. My Mayo pulmonologist does an annual CT & has ordered multiple sputum tests while contemplating whether to treat me. My symptoms are a slight cough & occasional (now) hemoptysis. I walk 2-4 miles, 4 times per week, garden & generally stay active. I faithfully do airway clearance twice a day with 7% sodium chloride & altho MAC is still present in my sputum, I feel very fortunate. Regular CTs, sputum samples, & Dr. visits make sense to me. Take care.

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Replies to "I was diagnosed over 4 yrs ago with bronchiectasis & MAC after landing in the ER..."

Hi Bee, just wondering when you had hemoptysis how much bleeding did you hv? I had same thing. Scary. I had a clot around the bleed. They took our following day. Thanks, Kathy

@bee1950 Your journey sounds very similar to mine…if I had not had hemoptysis I would not be diagnosed.
I am working on trying to figure this Medicare business out- when you say you changed from Medicare Advantage to a supplemental plan, are you referring to original Medicare with Medigap supplement?