Connect
← Return to COVID vaccines and neuropathy
Discussion
Comment receiving replies
The good news is that most patients on Neuro V Long-Haulers are reporting improvement about 9 months after vaccination. But most don't seem to have recovered completely. I still have numbness, nerve pain, and tire easily.
What helps me the most is rest and only light exercise. Most of the adverse reactions seem to be immune-mediated. Rest helps to suppress an overreactive immune system. I had an autoimmune response to the vaccine.
I would definitely share your information with your neurologist. The neurologists are seeing many patients like us Even if yours is skeptical, she should document the association in time in your chart.
Replies to "The good news is that most patients on Neuro V Long-Haulers are reporting improvement about 9..."
Hi. I've been dealing with back, leg, neck , and rib crushing pain since Mar 2021. 1st 2shots that turned to severe burning pain of all after booster. GPs and tests MRIs etc over and over. Sent to spine surgeon who was not interesting someone with so many areas of pain. Learned then, seems no one recommended a neurologist. I had to actually ask them to recommend a neurologist. How was I supposed to know this. I never dealt with back pain before vaccines. Now wait till April 15 2022 for that.
I find a lot of tests showing Myelitis, guillian- Barr, severe shingles. My brother has exact same severe pain, but couldn't take it, they found herniated disk. So he had surgery. Pain is not better.
Was not tested for Myelitis etc before surgery. There are treatments that improve all of these effects. These don't always show on MRIs. Why don't neurologist test for treatable nerve pains before doing surgery. Seems like common sense? A lumbar puncture? Do they always test for these problems before spine injections? You don't always have a fever, or paralysis with these treatable problems Maybe Myelitis is so rare, because they don't test for it till paralysis? I don't understand at all....
Also. Sorry for being lengthy!
Also, I also saw somewhere the 9 months slight improvement mentioned. But because vaccine side effects are so hidden and shunned, I can't find it again.
Thanks for all input and viewpoints.
Connect
Thank you for your response. That is good news, albeit a long time. I did notice that the symptoms seemed worse after walking rapidly on the treadmill, so I will take your advice and slow it down. And I certainly will share with the neurologist, if I can ever get an appointment with her. Have to go through my primary care doctor and that's 2 weeks out still. Patience.