I am SO tired of the side effects of prednisone. The main culprits are blurring vision, lack of sleep, emotional lability, and weight gain/puffiness. Yuck! It beats the pain and immobility of PMR and I'll settle for it if I have to, but I wish there were an alternative that would work instead. I have passed an article on LDN to my general practitioner (who first diagnosed PMR) and she is going to check it out -- hopefully, she will find it acceptable as a safe and potentially effective replacement. I am concerned about how long it will take to taper prednisone before beginning the LDN, but it will be whatever it will be.

I never realized how a chronic illness can change a person until this PMR business struck. It is demoralizing to lose function and mobility -- never mind the pain. But even now that prednisone has given me back function and mobility and eliminated the pain, I still feel like a stranger to myself in many ways. The 'cure' isn't worse than the disease, but it is a VERY mixed bag. I know I'm not "entitled" to perfect health, but I so miss the healthy days of feeling up-to-whatever-came-along. I try to concentrate on being grateful for all I have had and still do have, but this is a harder path than I would have chosen, if I'd been able to choose.

Does anyone have experience with LDN that they could share in detail? Just looking to feel hopeful again.