Good evening @maveric09 and an enthusiastic welcome to Connect. By introduction, i also have SFN and chronic myofascial pain syndrome. Mine was determined by a skin biopsy which indicated that it is severe at this point. Is that what determined your diagnosis.?

Let me see if I can answer your first two questions.....SFN is progressive as it takes way too long to regenerate replacement nerve cells. It is not fatal, however, many folks will encounter some form of it during their lifetime. And at this moment, there is no cure. There are some studies being done on possible regenerative medications.

Do you know how your SFN came about? Was it from chemotherapy or diabetes? Did your neurologist have a name for the type you have? Mine is from multiple traumas including accidental injuries and frequent surgeries. If the source is unidentifiable, it is labeled as idiopathic.

We can help you with the research information. I am going to introduce you to @johnbishop. He is our research expert and is quite familiar with the work done by the two professional organizations. John is also a neuropathy patient at Mayo Clinic in Rochester and knows what the relationship has been like. The only thing John doesn't have is pain......he only has numbness and what I call the tingle tangles.

Before I send you off to John, I would like to mention that there are options for treating SFN. For example, I started with Gabapentin for pain and numbness and Nortriptyline for depression and anxiety. I was quickly introduced to medical cannabis and now use only tinctures and topicals.....with CBD and THC, in appropriate dosages and formats. I have also found that mindfulness and meditation practice make a huge difference. Exercise is always very important including yoga and walking. At some point, you may want to try MFR, myofascial release therapy. I have two sessions a week and the goal is to keep my quality of life positive. As the pain and irritation progress, I will probably have to move to three sessions a week.

So....that's a start. John?????? please join us.

May you be safe, protected and free from inner and outer harm.
Chris