Connect
← Return to Anyone taken Evenity (romosozumab) for Osteoporosis?
Discussion
Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: Jun 17 2:01pm | Replies (1174)Comment receiving replies
Dear windyshores, Thank you for your reply. I have been researching the osteoporosis drugs and Tymlos has the same side effects listed as Prolia. Also I saw my doctor who manages my breasts, since I have LCIS, yesterday and she said the best drug to take is raloxifene, to replace Prolia. This is so very confusing. raloxifene also lists almost all of the same side effects as Prolia. I am so sorry that I ever got involved in taking any of these drugs. Do you give yourself an injection of Tymlos every day? How did you start out at a low dosage and then increase it? I do have an endocrinologist because I had a parathyroid adenoma removed. I think you said your endocrinologist was managing your tymlos. I don't know who I can trust to give me the best replacement for Prolia. I would like to find other women who have replaced Prolia and see what they did. Thank you
Replies to "Dear windyshores, Thank you for your reply. I have been researching the osteoporosis drugs and Tymlos..."
Connect
You cannot base decisions on a list of side effects, in my opinion, because you don't know how your own particular body will react. Your decision will depend on your DEXA scores and whether you have any fractures, and also on the status of your LCIS. I had invasive mixed ductal and lobular cancer and did Femara, which worsened bones. Raloxifene may be helpful for preventing invasive cancer, and will help suppress bone loss, but will not be as effective as Tymlos for bone growth. So if your LCIS is recent but pathology shows raloxifene to be a good choice, and your DEXA score is not severe, raloxifene may be a good way to go. You can google side effects and the main concern is deep vein thrombosis/pulmonary embolism/stroke which is rare but listed.
Tymlos comes in a pen with 8 clicks. To adjust dose, you just do fewer clicks. I started with two clicks. There are side effects, yes. If you have spinal fractures like me , side effects are more tolerable than the pain and disability of more fractures. But it sounds like your osteoporosis is better than mine and raloxifene will serve two purposes for you!
ps Reclast is also used for cancer patients (not that you have cancer).