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In shock after MAC diagnosis

MAC & Bronchiectasis | Last Active: Nov 1, 2022 | Replies (136)

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@sueinmn

It sounds like you have been seen by a doctor, who has confirmed that there are lingering effects, but nothing of an emergency nature. As long as your oxygen levels stay up and you don't have a high fever, you can probably safely wait to see the pulmonologist.

Here are some things you can do while you wait, to help you feel better:
Drink a lot of water or herbal tea, but limit or eliminate caffeine, alcohol and sugary drinks.
Eat a healthy diet - fruits, vegetables, non-fried foods. Limit chips, frozen pizza, and other high salt, high fat foods. If you feel to ill or tired to fix your own, buy healthy frozen meals and even low-sugar protein shakes.
Don't smoke or vape.
Move - even if you feel tired, it is important to keep moving to help clear your lungs. Try to walk for at least 5 minutes every hour, even if it is just around your house or apartment. Get out in the fresh air as much as you can.
Sleep propped up on pillows if it helps your breathing.
Try some deep breathing exercises - here is one example: https://www.youtube.com/watch?v=acUZdGd_3Dg

When is your pulmonology appointment? Have you tried deep breathing and exercise to help your lungs?

Sue

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Replies to "It sounds like you have been seen by a doctor, who has confirmed that there are..."

Thanks for the info. My family dr thinks I’m a hypochondriac and it’s frustrating. I was able to find an appointment with a new pulmonologist on Monday at a good university. I am doing breathing and clearing stuff but it doesn’t work that well for me. I also doing yoga and exercise, I also have tried eating better. I have lost a lot of weight and I am exhausted. Such a crazy time for me