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Ear Tinnitus and Pain with Neuropathy
Neuropathy | Last Active: Mar 21, 2023 | Replies (168)Comment receiving replies
Tried to edit but it was too late, so here is my revised Reply. Thanks for the reply, it feels good to be able to vent out without feeling guilty and/or judged. It's been awhile since I've tried any drugs, therefore difficult remembering everything I've tried. The one's I can remember are Doxepin, Gabapentin, Amitriptyline, and I believe Nortriptyline. In short, at the time, I didn't receive any relief whatsoever and actually I wouldn't have known I took anything other than the horrible side effects I experienced, like; Drowsiness, Dizziness, Headache, Blurred-Vision, Dry Mouth , and a consistent Upset stomach. In short, I still had ALL the Neuropathy symptoms but unfortunately with the additional side effects added to my plate. Because, I still try to ride or walk several times a week and when I was on meds I couldn't do any type of exercise from the side effects, especially being sick to my stomach. As I said earlier, I've pretty much lost hope for any relief. For one, because it seems medical scientist out there, don't seem to have many incentives to find any answers. Especially over the last few years, the entire world is focused only on COVID, leaving everyone else to shovel-into the scrap heap of bodies without much empathy towards any long-term outcomes. In northern Michigan where I live, the Hospitals over the past 18 months have been pretty much shutdown for normal activity, and running almost exclusively for treating COVID and seems almost forced into other life emergencies like deliveries, myocardial infarctions and strokes. The bottom line, the medical world is operating with "unorganized chaos" ! And you are definitely right, for any hope we must be our own physicians... That I have .... without any success.
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Thank you for sharing your expertise. I agree that doctors are now so specialized with in their specialty that none of them are wanting to connect the dots.
I have neuropathy that began in my left toe then recently it went to my other foot. Now it is up to my knees and on the move. It has destroyed my gate, and I am now frightened. I also am extremely lightheaded and have been to the best doctors with no prognosis. I was extremely active and it has destroyed my life as I knew it. I have had a slight tinnitus for a long time. And BRVO and DVT. The neuropathy bothers me the most and is rapidly progressing. I never hear of research being done and so many have it??? I had in operable cancer 30 years ago and a lot of radiation, which later gave me cancer. I don’t worry about that, however every doctor I see, says all of my problems are from the radiation I had so long ago. Have you heard of a fund for research to find a cure for neuropathy? I have not. All the best to you.
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@usadavidh I hear you. I feel really lucky to have the neurologist I have. He is willing to listen and try new/different things. I also have bad side effects with the medications I’ve tried. I’ve been through cymbalta, gabapentin and now Amitriptyline. So far they haven’t helped my neuropathy symptoms but as I mentioned, they help with coping/depression. So as I try new meds for the neuropathy, I’ve learned I also need something that will help me through it all mentally. I’m 44 years old and had been looking for answers for about 20 years before I found my neurologist who suspected neuropathy and did a biopsy to diagnose me, finally. I’ve always been a very happy person, never suffered from depression but that all changed about 5-6 years ago and that’s when I got more assertive about finding answers. All of my symptoms have progressed over the years. Doctors had me convinced I was just going through early menopause. Obviously that was not the case! Having answers and support systems (like this forum) really help us as we move forward and act as our own health advocates. I’m glad you came here to “vent”, it really does help to connect with others who truly know at least a little about what we’re going through.