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DiscussionWhat can I expect on dialysis? How does it affect your daily life?
Kidney & Bladder | Last Active: Oct 16, 2022 | Replies (40)Comment receiving replies
Replies to "Hey Ginger….Thank you for responding to me. I had endometrial cancer back in 2000. I had..."
@pegalini That's a lot to have to deal with! Yours is certainly not the first time I have read while we are busy getting one problem remedied, another happens.
Yesterday I had an appointment with my nephrologist, who I simply adore for her conciseness and education. One of the things she strives for is the concept of healthy systems so we can do dialysis. Albumin level, which is a blood protein, is ideally in the normal range, as dialysis can deplete your system. I have been struggling with that, and she recommends several small meals a day, including quality protein. Peanut butter [if you can tolerate it] on toast, a hard boiled egg, chicken, cottage cheese with fruit, you get the idea. I myself get many days that food does not appeal to me at all, so I have to force myself to eat. BTW I am also a cancer patient undergoing chemo, so that plays a factor!
On the website I mentioned to you before, there is a lot of information about diet. Also, going to American Kidney Fund website, you will see information about dialysis and diet https://www.kidneyfund.org/kidney-disease/chronic-kidney-disease-ckd/ckd-resource-center/
As you may have heard before, everyone is different, and what works for one may need to be tweaked in your situation. That is why Mayo Connect is important, as we share what has worked, or not, for us. We learn from each other! And, I will say, that it is empowering to have a sayso in our treatment, and work with our team to make decisions together.
What will you do today to start getting ready for fistula placement? do you have someone with you to drive you home, to take over your chores for the first several days?
Ginger