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Anyone with lupus or SLE: How do you manage your condition?
Autoimmune Diseases | Last Active: Feb 23 6:43pm | Replies (17)Comment receiving replies
@jearanai13 I’ve been on prednisone for about 4 years and last May i started on Mycophenolate mofitil. My brain inflammation is “under control” so I’m now tapering the prednisone. I’m at 5 mg currently.
Yes, prednisone is hard on the body; I’m now dealing with bad osteoporosis and just had cataract surgery. But, my autoimmune disease that almost killed me, is under control.
Is your doctor planning on using something to control the lupus?
Replies to "@jearanai13 I’ve been on prednisone for about 4 years and last May i started on Mycophenolate..."
My Neurologist wants me to try that drug. Besides the Lupus I have terrible neuropathy. What kind of side effects have you experienced if any?
Thank you,
Sallie
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My doctor wants to start me on Methotrexate. It’s immunosuppressive agent. I think I will give it a try as my symptoms are not well controlled after getting off prednisone. Now I am on hydroxychloroquine only. Maybe it’s not enough to suppress my immune. Thank you for sharing your medications with me. I will look to mycophenolate mofitil. I have never heard of it.