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Anyone with lupus or SLE: How do you manage your condition?

Autoimmune Diseases | Last Active: Feb 23 6:43pm | Replies (17)
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@jearanai13

The doctor said prednisone is not good for long term health. I also couldn’t sleep much with prednisone. What’s the medication that you use to replace prednisone with no bad effects?

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Becky, Volunteer Mentor | @becsbuddy | Feb 2, 2022

@jearanai13 I’ve been on prednisone for about 4 years and last May i started on Mycophenolate mofitil. My brain inflammation is “under control” so I’m now tapering the prednisone. I’m at 5 mg currently.
Yes, prednisone is hard on the body; I’m now dealing with bad osteoporosis and just had cataract surgery. But, my autoimmune disease that almost killed me, is under control.
Is your doctor planning on using something to control the lupus?

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