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Anyone with lupus or SLE: How do you manage your condition?

Autoimmune Diseases | Last Active: Feb 23 6:43pm | Replies (17)
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@jearanai13

I got diagnosed with SLE three months ago. Inflammation and pain are affecting me the most every single day. After I stopped prednisone, my inflammation came back as well as swollen joints. It can be difficult to walk if it affects joints on my feet.

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Becky, Volunteer Mentor | @becsbuddy | Feb 2, 2022

@jearanai13 it sounds like you have been dealing with this inflammation and pain for 3 months except when taking prednisone. Is there a reason why the doctor had you stop prednisone? I know prednisone can be hard on the body, but it can make such a difference. After 4 years, I’m just now coming off of prednisone. The doctor replaced it with a ‘steroid replacing’ drug that has the same positive benefits as prednisone but none of the bad effects.
What is your treatment plan?

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