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Pancreatic cyst

Pancreatic Cancer | Last Active: Mar 27, 2022 | Replies (65)

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@hopeful33250

@judithsh

You are wise to be seeking out the best care for yourself. Yes, I would appreciate it if you would continue to post. I would be interested in knowing what JH has to say. If you are comfortable doing so, please let me know how that consult goes.

If I can invite you to conversations about pancreatic cysts that would also be great. People who come to Connect are helped when they talk to others experienced with their own health problems.

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Replies to "@judithsh You are wise to be seeking out the best care for yourself. Yes, I would..."

My experience with JH to date: The Pancreatic Cyst Clinic won't make an appt until its drs have seen a patient's medical records. All my medical records are online, but the Clinic won't access them by email (using a password generated by the forwarding institution). So I sent a disc and all reports by USPS overnight priority express mail with a return receipt request to the address given to me over the phone, the one that appears on the web site. I got the signed return receipt back, but heard nothing for 9 days so I called in the early morning. The Clinic did not have the records. The person on the phone was going to look for them, but did not have them by the end of the day. She suggested that I send them again to a satellite medical facility at a different address, and said she would pick them up herself. My impression so far: JH doesn't know what it's doing!