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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)

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@ripley

What tests did the Dr base your diagnosis on? I don't have scalp tenderness or any of the symptoms you had, just headaches on the left side that come and go, and pain across the back of my neck. My blood work is all ok. Since 2019, my SED rate was never above 16 except for a week ago it was 25. My CRP was .04 on 1/25/22 but a day later when I was diagnosed with Covid it was .20. In 2019 I had both left and right arteries biopsied and it was negative. I know some people can have normal biopsy's and blood work and still have TA. I do have thyroid disease and take a supplement, which was recently reduced from 50 to 25mcg. Thanks for all your information.

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Replies to "What tests did the Dr base your diagnosis on? I don't have scalp tenderness or any..."

Hi @ripley my inflammation markers were high - ESR and CRP and the biopsy of mt temoral artery was positive. Sometimes doctors will do a trial of steroids to see what the response is - if it is PMR or GCA (Giant Cell Arteritis) there is a dramatic decrease in symptoms. Could this be something related to your thyroid condition? Has that been looked at more closely? Sorry you have COVID! Best, Teri