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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)

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@johnbishop

Welcome @ripley, It must be really hard not knowing what's causing the left sided headaches and having them go away for awhile and then return. There are a couple of discussions that sound like they could be related to your symptoms.

-- Temporal biopsies to diagnose GCA: What's your experience?: https://connect.mayoclinic.org/discussion/gca-biopsies/
-- Occipital Neuralgia: https://connect.mayoclinic.org/discussion/occipital-neuralgia/

I'm not sure if this answers your question can it really be temporal arteritis going on for 2-1/2 years but it sounds like a possibility. "The most common symptom of temporal arteritis is a throbbing, continuous headache on one or both sides of the forehead. Other symptoms may include: Fatigue. Fever." --- Temporal Arteritis: Treatment, Symptoms & Diagnosis: https://my.clevelandclinic.org/health/diseases/15674-temporal-arteritis

@zaa and @tsc may have some thoughts or suggestions to share with you. Have you thought about seeking a second opinion or maybe talking with a rheumatologist?

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Replies to "Welcome @ripley, It must be really hard not knowing what's causing the left sided headaches and..."

I have a video appt on Weds with a PA to a neurologist and an in-person appt at another neurology clinic on 2/25. I asked my Dr to try and get an appt sooner than that. Thank you for the suggestions.