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What’s next: Seeking advice on how to navigate diagnosis appointments?

Neuroendocrine Tumors (NETs) | Last Active: Feb 21, 2022 | Replies (36)
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@astaingegerdm

I totally agree with Teresa - take a step back, relax and allow the process to find a diagnosis develop systematically.
I fully understand your feeling of urgency to find an answer and to know what’s in your future.
You are going to the best possible medical center for evaluation and treatment.
I was there a few times for testing before a final diagnosis- not for NET- but there was always trying new approaches and always easy to communicate in between visits.
Hope you have a good visit!

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Replies to "I totally agree with Teresa - take a step back, relax and allow the process to..."
phoebeghostwriter | @phoebeghostwriter | Jan 31, 2022

Thank you so much! I’m so scared and I’ve been circling through local doctors that treated me like I was hysterical or menopausal since August. Then when symptoms didn’t ease up starting in November I became fearful. I have a beautiful 6 year old that needs me and I’ve always been the strong one, mentally and physically. I’m only 43 years old. Google is honestly how I started researching but the stats are scary- which is why I’m desperate for imaging. I know you can understand too and I’m not alone but being positive is hard when it feels like I woke up in a nightmare. How do we go from IBS to this in 6 months? Thank you for your support. Praying Mayo finds the answers. 🙂

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