I was diagnosed twenty years ago with
“Scar tissue” in the spinal cord first. Doctora at the Mayo Clinic called it arachnoiditis. Cauda equina “ clamped up”
Terrible pelvic floor pain, terrible stiffness and pain in the back of my legs ( on and off )
I also suffer from intractable trigeminal neuralgia and autoimmune
Conclusions ( personal only )
Gabapentin is a terrible medicine
It causes amnesia ( memory loss ) on me
I have a pain pump but ends in my brain only for TN
Arachniditis is hard to treat. Epidurals and blocks haven’t helped me
Last successful treatment for pelvic floor is very specific physical therapy with the best P therapist ever doing stretching excercises and receiving special “ massage “ at the treatment facility. Pain is far from gone but I feel more “ lose “ in that area whuch adds to comfort
I am using wheelchair and electric scooter but walking now around the house . Huge improvement
Stiffness and pain in the back of my legs is there. Pain in joints there on and off
Don’t let them inject more stuff in your spine. We, people with arachnoiditis luck an enzyme that dissolves the sacar tissue so we build more if it
Hope this will help!
Arachnoiditis does not have a cure
We have to help ourselves and meditation is another tool
Good luck dear arachnoiditis friends
Please post if there is something new !
Thank you soo much!