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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Replies to "Hi Karen @karenhope, Welcome to Connect. Sorry to hear the Methotrexate had the bad side effects..."
John and the other mentors were a great help during my 20 months going through the Prednisone tapering process that Mayo Clinic had put me on. It was a slow process but it worked. I worked with my dietician during that time but still gained about 16 pounds however I lost it within about 18 months. I exercised before, during tapering and ever since which was and is mainly walking and some weight bearing exercises. I see my rheumatologist three or four times a year and she always does a blood draw.
I have continued to follow the PMR group at Mayo and once in awhile I ask questions as new related issues come up.
He’s mentioned other meds but I’m not open to them right now
Unfortunately, I'm not familiar with any alternative treatments for PMR.
Greetings....First, let me say how much this blog has helped me already. I revised my 1-10 daily scale to make the ratings more meaningful in tracking my pain. Also, your posts have given me the courage to be more in charge of my dosage. I increased my dosage by 1mg and my pain is way better...almost gone. I'm trying to decide now if I should increase it another .5mg or a full 1mg. I'm at 17mg right now trying to deal with this flare up, which I now know was most likely caused by going from 20mg to 15mg overnight. No more of that! I'm wondering if anyone is taking krill oil supplements. I've been reading that it has greater benefits as an anti-inflammatory substance than fish oil. Evidently, it is absorbed by the body more easily. Does anyone have experience with krill oil? Thank you!!!