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New Daily Persistent Headache

Chronic Pain | Last Active: Mar 27, 2023 | Replies (140)

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@dhramsey

I have been dealing with a new daily persistent headache for five years now. I am 49 years old, have been to 5 neurologist's, have had 4 MRI's, and cerebral angiogram, 10 different migraine meds including two CGRP's.

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Replies to "I have been dealing with a new daily persistent headache for five years now. I am..."

Hi @dhramsey - welcome to Connect. I can't imagine how awful it would be to deal with a new daily persistent headache for as long as you have. I hope you and other members find some answers that help. I did a search using Google Scholar (https://scholar.google.com/) and found a few articles that may provide some useful information:

New Daily Persistent Headache and OnabotulinumtoxinA Therapy
-- https://journals.lww.com/clinicalneuropharm/Abstract/2019/01000/New_Daily_Persistent_Headache_and.1.aspx

An RCVS Spectrum Disorder? New Daily Persistent Headache Starting as a Single Thunderclap Headache (3 New Cases)
-- https://onlinelibrary.wiley.com/doi/abs/10.1111/head.13495

Have you found anything to be helpful or are you still dealing with the headache? I was recently diagnosed with New Daily Persistent Headache. (Not sure why they don’t call it Old Daily Persistent Headache because we have it for years.) Mine started July 29, 2019
so it’s 3.5 years old. It’s becoming harder and harder to deal with having it. Thankfully, it’s usually low on the pain scale and mostly ignorable. I recently have had more days of it flaring up, though, and I feel like it will literally drive me insane. I have major depression and anxiety, as well as currently an acute flare-up of chronic back and hip pain. Some days it’s just too much for me to deal with emotionally. No one seems to fully understand the idea of a headache being nonstop for years and years without a moment of reprieve. My only reprieve is during sleep, once I get past the evening tinnitus.