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Anyone diagnosed with “atypical connective tissue disorder"?”

Autoimmune Diseases | Last Active: Jan 31, 2022 | Replies (11)
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@cvsnow

I'm sorry I didn't clarify. The implants were removed in 1993 in an emergency surgery because I had bronchial pneumonia for 7 months. It was either I die in the surgery or die from the implants. The connective tissue disease causes all of your ligaments and tendons to tear. 3 months ago I had my medial meniscus fixed but now my knee is bone on bone. These ligaments and tendons will just continue tearing because of the disease. Both of my shoulders are basically hanging there. I don't know how else to describe it. I can go in and have my ligaments and tendons fixed but in a few months they're just going to tear again. It's kind of painful. What about you?

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Chris, Volunteer Mentor | @auntieoakley | Jan 29, 2022

I cannot imagine the pain you face each day. I have a friend who deals with this, she does try to have a life anyway. She comes to the barn a few times per month even though she has given up her own horses. She spends time with mine.
My heart breaks every time I hear about this, and I think about how they always say, “we fixed this problem” but truly there is always a risk with implants, even if the risks have changed. If women truly understood the risks, I think a lot less of them would opt in.
Is there anything that makes this problem a little better in your day to day? Have any interventions been tried, other than surgical?

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