← Return to What’s next: Seeking advice on how to navigate diagnosis appointments?

Discussion
Comment receiving replies
@phoebeghostwriter

The appointment with the endocrinologist is for pituitary which is what got me in door because of a possible mircoandenoma. However even with my serotonin high she is only allowed to run my serotonin again and will do chrome G I think. So I’m staying until Tuesday to do another Urine test. They did another scan of my pituitary which I am awaiting results. But if that checks out ok then back to square one. She said she would have to refer me to another department for NET but I’m so confused because diagnostics seem so segmented but endocrinologists don’t diagnose NET tumors. They didn’t seem to comment on the 381 serotonin level. I did have a recent scan that showed a thickening of small bowel. I don’t know how to make things move quicker. I need different blood tests and real imaging. Im scheduled for Mayo Feb 16. Hopefully they can move things along. I don’t know how to advocate further and I know time is important.

Jump to this post


Replies to "The appointment with the endocrinologist is for pituitary which is what got me in door because..."

Allow me to tag some fellow NETs members to help you prepare questions for your upcoming Mayo appointment, members like @hopeful33250 @amandafl @remi @jhilbish @cvb @lenorahaston @captain1950 @astaingegerdm

@phoebeghostwriter what questions are you planning to ask?