I can relate. They called my headache migraines at the beginning too and it limited the kind of care I received and the compassion I got from ppl. I’m heading towards the 9 year mark in a few months, and I have had to remind myself that medicine is called a “practice” because going to medical school, specialty training, passing tests and getting a job doesn’t make someone a great doctor. Being proactive in the care of patients is still an individual personality trait. I’ve had numerous neurologists, too. Honestly the last two before my current one shrugged their shoulders and washed their hands of me when they couldn’t help me. You definitely have to be your own advocate on this journey, and it sounds like you are! Don’t give up! Take a rest and regroup if you need it, but then keep going. The one thing you *can* be certain of is that if you don’t try to find answers, no one else will. After every unsuccessful treatment I’ve taken a break and just focused on the basics of eating well exercising and trying to do things I enjoy. Sometimes that’s necessary for my body to detox off whatever crazy drug the docs had me on. Other times it was purely a mental break from the hunt. But always I know that I have a finite amount of mental focus to use, so when I run out of steam in one direction, I need to focus on something else for a while. I’ve learned a lot about how to manage my pain and how to spend time with friends this way. I’m still not able to work or even return to my pre-NDPH social schedule, but I’m a bit happier than I was. Good luck!