Thank you John, i did have flare up i guess as i was titrating prednisone it would always occur day 4 after decrease and i would just battle through as i wanted to be off prednisone. Funny thing is evening, night time is much worse even when i felt great afternoons are when i would deteriorate and fatigue kicks in much different to original diagnosis which was all day everyday. i have been awake about 4 hours now and the pain is OK but the weakness is getting slowly worse. I recently retired as a Director of Health just too much throughout the COVID times so i am health literate but find this AI perplexing to say the least. I tend not to "google" too much as there is so much misinformation on most things. I am so happy to have found this group though! I am turning the big 60 this year! Thank you for your reply.

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