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PMR and exercise: What helps you?
Polymyalgia Rheumatica (PMR) | Last Active: 12 hours ago | Replies (185)Comment receiving replies
I found this group while searching for flare up information, my pathway through PMR has been difficult diagnosed 3 years ago was accidentally left on 35mg of prednisone for 6 months, tried biological was great however diverticulitis was aggravated so had to stop, given Arava and developed peripheral neuropathy both feet (confirmed on EMG) Arava stopped. It has taken me over 12 months to titrate prednisone and finally January 15th 2022 took my last dose, felt wonderful so much energy just felt me! 23rd and 24th assisted pregnant daughter and husband to pack their house to move into their first home. Could not believe how much energy i had and how much i was able to do. 25th pain was so intense did not sleep 26th for more than 2 hours due to pain today 28th actually sleep ok mild pain overnight and on waking. Thinking it is a flare up due to physical exertion CRP measured yesterday is elevated. To add to this my Rheumatologist is 6 hrs away and only connection is to call her leave a voicemail and she will get back to me in about a week. My question is do most of you simple battle through a flare up or is it normal to increase meds. I am not looking for advice to increase meds just trying to understand what is the normal process, i will be waiting till i hear back from my specialist prior to doing anything, and maybe it will resolve on its own ? First "flare up" as first time in 3 years not taking medication? Thanks
Replies to "I found this group while searching for flare up information, my pathway through PMR has been..."
I've been on prednisone for almost a year and diagnosed with PMR about 8 months ago. I'm at 5 mg per day now. I asked the rheumatologist what to do if the pain increases and he said to increase the dose 1 mg per day for a week. If that doesn't work, repeat. My concern is when I get another shot of Covid vaccine. The first shot led to having PMR so I am not enthusiastic about having the second shot.
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Welcome @deniseinca, My PMR is currently in remission but I've had similar experiences as you describe when I really overdo the exercise or I'm outside 4 or 5 hours shoveling snow....but then I'm an old guy at 78 🙂 When I was tapering down on prednisone, my rheumatologist always told me to listen to my body and not overdo the physical exercises. I'm sure others can relate to your situation also and may have some experiences to share with you.
Also, my first time around with PMR was 3 and half years. I did have occassional times when I woud have aches and pains which I thought might be the PMR coming back but it was always after I over exerted myself and after a few days of not doing too much I felt a lot better.
Do you feel better as the day goes on?