Connect
← Return to Controlling the Anger and Sadness: My Neuropathy is Overtaking Me
Discussion
Controlling the Anger and Sadness: My Neuropathy is Overtaking Me
Neuropathy | Last Active: Jan 30, 2022 | Replies (67)Comment receiving replies
Debbie, My best guess is that it doesn't matter the origins of your neuropathy. What does matter is if you happen to be low in thiamine. My reaction to the Benfotiamine was so quick that I imagine I had to have been low in thiamine. For me, the Benfotiamine made a giant difference. If I can help anyone here, I am happy. We get little from our doctors because there is no real treatment that is successful. Anything that has helped me has been from the people here. Good luck, Debbie! Lori Renee
Replies to "Debbie, My best guess is that it doesn't matter the origins of your neuropathy. What does..."
Connect
Hello folks, I have been reading everyone’s posts. I can relate to your neuropathy, I have been diagnosed with CIDP post COVID vaccine, it took almost a year for my care team to finally make the dx. For months I tried every B vitamin on the market, I tried NSAIDS, Lidocaine patches, zinc, magnesium you name it. I am an anesthesia provider and I became so frustrated, my providers just brushed me off and had no Idea what was going on or how to begin to treatment. After about 9 months of paresthesia and muscle weakness of my extremities and having difficulty walking, standing form a sitting position and severe joint pain I lost my patience with them. I demanded referrals to rheumatology and neurology, EMG testing, imaging, labs and a lumbar puncture. Neurology was great, he saw me read the EMG results and diagnosed me in 15 minutes. I started IGG infusions, Gabapentin , hydrochloroquine, and Mobic. I have also made several life changes, I have stopped all ETOH and really decreases sugars and carbs. I am not cured but I sure feel better. I might have a few days that are rough but I am much better. If you have any questions let me know.