If you have any questions, please ask. I will virtually hold your hand through this, if needed! I have been where you are, my sister will occasionally complain about my taking it too literally to squeeze her hand if it hurts ( different procedure).

Jill, sorry to hear everything that you are dealing with. it’s so unbelievable to me all of the different diseases, most of which I never even heard of, and all of the pain, and suffering people are living with everyday. I really took my good health for granted before my diagnosis, I had always been healthy, I just turned 73 in December. How quickly your life can change! It’s only been a year since my diagnosis, and I have done well with my treatments. My biggest concern was stopping the progression of the scarring of my lungs. Success, I had a pulmonary function test at the end of December, and my Lung Function is stable. Thank God! Last week I had labs, and follow up with my Rheumatologist, my Dermatomyositis has flared, rash, and muscle weakness, so they want me to start IVIG. I am grateful that I do not have pain. Thanks again for your advice. I have recently joined some private support groups on Facebook, one is IVIG, and how important the rate of infusion was mentioned a lot. I know probably TMI, Sorry. Hope things continue to get better for you, and that you are able to live life! Keep fighting, and never give up HOPE! Kathryn