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Myasthenia Gravis flares donating blood

Autoimmune Diseases | Last Active: Dec 21, 2023 | Replies (9)
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@fran1952

I was diagnosed with MG two years ago I have moved to Georgia and I now have a new Nuro doctor and he took blood run test and he says I do not have MG can you have MG without showing up in bloodwork?? If you have symptoms such as weakness,tired, trouble at times lifting my head off a pillow? Shortness of breath really bad , stairs are the worst!

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Replies to "I was diagnosed with MG two years ago I have moved to Georgia and I now..."
penn1023 | @penn1023 | Oct 23, 2023

I think you can have sero negative MG. This means it is not shown in the blood but you have all the clinical signs and symptoms.
Ask about that.

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gailedwards | @gailedwards | Dec 21, 2023

Yes, I am one of the few MG patients, who do not have one of the 2 MG antibodies that show up in Mayo Clinic's Blood Tests. This also caused me to denied treatment with new gMG meds. However, I understand that reasearch is currently underway to identify the unknown antibody in 10%-15% of people with MG.

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