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Alternative to Prednisone for Treating PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Aug 25, 2023 | Replies (68)
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@kvd9

Thanks for all the info! It took me awhile to get through since exhaustion makes my mind less sharp!
My husband has been taking Turkey Tail mushrooms since he was diagnosed with prostate cancer (he had to have his removed). Since it is anti inflammatory, he thought I might benefit as well, so I have just started to experiment with that. (After all, you never know until you try!) Have you heard of anyone trying this?
I will bring these articles you quoted to my next doctor appointment, to see what may be best in my case.
And I did do Pilates while I was on Prednisone last time.
Do you have any more dietary, health advice? Thanks in advance for taking the time!

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Replies to "Thanks for all the info! It took me awhile to get through since exhaustion makes my..."
John, Volunteer Mentor | @johnbishop | Jan 27, 2022

To be honest I had never heard of anyone using Turkey Tail mushrooms and had to look it up. It does look like it does have some benefits but does list the following at the end of the article - "Even though it has a good safety profile, it’s important to speak with your doctor before supplementing with turkey tail mushroom."

5 Immune-Boosting Benefits of Turkey Tail Mushroom: https://www.healthline.com/nutrition/turkey-tail-mushroom

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Teri | @tsc | Jan 27, 2022

Hi @kvd9 when prednisone was disrupting my sleep, I found a tea of lemon balm and valerian helpful. I would get up and read a book, drink the tea, get drowsy, go to bed and be able to get a couple hours more of sleep. I stopped feeling like a super energetic zombie.
Don't take melatonin as PMR is an autoimmune disorder and melatonin is to be avoided. Now that I'm down to 4 mg my normal sleeping pattern, I sleep as I always did, before 40 mg for Giant Cell Arteritis.
I did Pilates for 25 years, and when diagnosed with osteoporosis was shocked to learn that many of the Pilates exercises - involving forward flexion of the spine, that wonderful C curve, can cause vertetebral fractures. The same is true of Yoga. I found exercisews appropriate for osteoporosis - Carol Michaels and Sara Meeks.
Best wishes, Teri

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