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@lorirenee1

Robyn and Debbie, and to all who have recently written here; Of course, I relate to everything you write. My feet can utterly rule my life at times, but not as bad as I was a year ago. I want to share some things that have actually helped my throbbing feet. First, I use Benfotiamine, which is a fat soluble form of thiamine (Vitamin B1) that I buy on Amazon. Low thiamine levels can cause very bad neuropathic symptoms, and yet it flies right under the radar with most doctors. I discovered using it from another person right here on Mayo Connect. Within 48 hours of taking it, my throbbing feet went from a 10 to a 5 or less sometimes, on the pain scale. Benfotiamine is widely used in Europe, but not so much in the USA. I have no idea why. It can take several months to work, but for me, it was immediate. I take a 300 mg. pill twice daily. Another thing that really helps my pain is Kratom. It is not sold in about 5 states within the USA, but I don't know which ones except for Wisconsin. The World Health Organization just evaluated it, and had thousands of letters from people who said it helped their anxiety, pain, and depression. WHO decided to leave it be, and not give it more scrutiny even though the FDA wanted it scrutinized. There is more and more solid. controlled research supporting it's use for pain. I swear by it. It is made from the leaves of SE Asian trees that resemble the coffee plant, and ground into pills. I buy the pills listed for pain at ethanaturals.com The two owners of that company are chronic pain sufferers as well. I swear by Kratom. It must be respected and treated as a medication, as this is what it is. My best to all of you. Our roads are not easy. Lori Renee

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Replies to "Robyn and Debbie, and to all who have recently written here; Of course, I relate to..."

Thanks so much Lori Renee - this is why I like this forum, we get coaching and ideas that our medical doctors don’t give! I am going to try the Benfotiamine for starts. I googled, and while articles talk specifically about it possibly helping diabetic neuropathy (which I do not have), I can’t see any harm in it. Doctors have been unable to answer my question if relief for diabetic neuropathy has similar results for idiopathic neuropathy… Since I was told 5 years ago I “may” have had a vitamin deficiency, but they don’t know which one, perhaps adding this B1 would be magical. Thanks sincerely for your input. Debbie