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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)

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@kathrynmc

I was diagnosed with DM and ILD in January of 2021, I have been treated with prednisone, Azathioprine, and HCQ since my diagnosis, and so far my lung function has remained stable, but my labs on 1/24/2022 showed increase in inflammation, and elevated liver enzyme’s. Also my skin rash on my hands has flared. At my follow up visit with my Rheumatologist on 1/25/2022 the recommended I start IVIG treatments as soon as I can get an appointment. Prior to this my rheumatologist was talking about Rituximab infusions if there was any progression of my lung disease. Since my lung function remains stable, they are recommending IVIG Infusions. It’s a lot for me to process, so I was hoping someone who has gone through this could tell me about what they experienced. What I should expect, if there are things to help me prepare for the best outcome with these treatments and to help prevent some of the side effects. Thank You, Kathryn

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Replies to "I was diagnosed with DM and ILD in January of 2021, I have been treated with..."

I do not know the correlation of the acronyms to the diseases, but I am currently having Ivig treatment, this past Monday. The key is to have the infusion as slow as possible. (Each brand is different on the volume vs. Time.) Headaches are a major side effect, so be prepared and talk to your provider to have medication available ahead of time in case it is needed. There could be others just know what they are for your particular script.
I hope all goes smoothly and you heal quickly and feel better soon.