Controlling the Anger and Sadness: My Neuropathy is Overtaking Me

My best counsel to you, as I, suffer from neuropathy, is to concentrate your thoughts on those in your life who are dependent on YOU: a mate, a cold or grandchild, a friend!
Carry on to the best of your ability knowing how important YOU are, neuropathy and all, to their well-being. And while your physical pain & discomfort may persist, your mental distress should diminish in that perspective! Mind over body always.

typo: cold should have read child

James, I very much appreciate your perspective and advice. My neuropathy has worsened markedly over the past month. Add to that the fact that I am very concerned that my son has autonomic neuropathy based upon a number of symptoms he is experiencing. I'm trying to summon the courage to face these new realities, but it is very hard. I just don't know if G*d made all of us strong enough to deal with this. I will try my best to take your perspective to heart though, and I thank you for it.

I had my worst pain day ever from small fiber neuropathy and fibromyalgia last week. I was off 3 months. I had to go back Dec. 31 for insurance, but now need to think about going out again. It is is discouraging. My therapist suggested I give work a retrial by going back. Now I may have to quit. I hate these diseases!

I was hypnotized twice . She made me realize that there is nothing can't do. Gabapentin an c tramadol havd helped me out also . My doctors say that I have idiopathic neuropathy . The doctors use the term idiopathic . Because they are idiots .

Never quit. It is tough keeping you head up when you are hurting . I make plans and force myself to be active .

I'm so sorry, I know exactly how you feel. I didn't realize there were so many people also dealing with this. I don't feel alone and as crazy. Some days I feel I can't do it anymore because it is so overwhelming. I am also very angry and it seems like everything irritates me anymore. I do not like the way I am right now.
Hang in there. I pray they find an answer for all of us.

I know exactly how you are feeling. I used to walk every day, now I can’t. Thank God I can still walk around the house and to shop but I am heartbroken that this neuropathy has stopped me from what I loved, walking for about an hour every day. I try to be grateful that I can still walk but it’s very difficult. Especially after being up at night with extremely painful feet.
We just need to hope that we can keep emotionally “up”.

I’m just curious ; could you adjust your cbd dose (I’m sure you do not need to have this suggested to you , but I’m curious as to what your experience with CBD has been ).
I use a lotion form of CBD that I buy from Whole Foods . It doesn’t affect me mentally.
It seems so unfair to live with the terrible pain and dysfunction of neuropathy without some sort of relief .
I have neuropathy , but I’m on lyrica and a small fentanyl patch for other reasons . But when my patch is not changed or I have been out of my meds , my feet really start to hurt so badly and it’s in such a weird way also . I don’t know what I would do if I could not take those meds . Perhaps we need to return to some of these meds in a very controlled fashion instead of allowing people to just suffer . I have been in so much pain before that it superseded anything else in my life and being told to do breathing exercises or imagining my favorite place doesn’t cut it . I came to a place where I thought I just didn’t want to be here anymore ; I didn’t want to kill myself, but I didn’t want to be here, either . So my pain has been basically relieved by the big ole bad opioids that medicine has forsaken . And I don’t apologize for that . It is the only way I can participate in this life at all . So do know that I understand how you feel and I have been there but that I also have found some relief . I will always have a certain amount of pain , but I can pretty happily (no euphoria ) exist this way . I hope and pray you find some help - don’t give up , keep asking .

This is some info I found out from my neighbor ~ When she tried to claim disability and unable to work it was approved only after being unable to work for 1 YEAR. If you go back to try it and find out it is too much the year starts the last day of work. FYI