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SFSN: Symptom Relief

Neuropathy | Last Active: May 10 10:11pm | Replies (18)

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@marylynn13

Could you tell me what your symptoms are? Do you know why you have SFSN? I have trigeminal neuralgia, paresthesias and dysesthesias in upper and lower extremities as well as vertigo and neurogenic cough. Recently I developed gastroparesis. So now I am getting autonomic nerve dysfunction. My EMG's have been negative.

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Replies to "Could you tell me what your symptoms are? Do you know why you have SFSN? I..."

Hi there @marylynn13! It sounds to me as if you have layers of symptoms related to your condition(s). I'm so sorry you are suffering, I know firsthand this can be a lo deal with and overwhelming at times. You are not alone in your struggles! As far as my symptoms go, keep in mind I have 3 conditions all feeding into one another - SFN, ALS-4 and CRPS II. My SFN has been deemed idiopathic and it affects all 4 of my limbs, but it started primarily in my arms. It has taken me years to get to this point, and I've undergone a lot of physical trauma amidst it all. The main symptoms I deal with - radiating / electric / throbbing pain down my arms, muscle cramping, dyesthesia, parasthesia, hypersensitivity, hyperreflexia, pressurized pain underneath my fingernail beds, squeezing in my hands, complete numbness in hands, numbness below my knees, weak hands / some atrophy in right, nausea, decreased bone density and some kidney dysfunction. My EMGs were not textbook any of the times I had them done (probably 5 by now), and I've had 4 surgeries prior, one involving major complication. My body's a bit of a mess, but I'm finally learning how to track with it. 🙂 I hope you can find relief and answers.