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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 1 day ago | Replies (6021)Comment receiving replies
Welcome @1puttman, I also have idiopathic small fiber PN. It started in my toes in my 50's as near as I can remember and gradually worked it's way up to just below the knees before I bothered getting a diagnosis. You are right. It is a truly evil disease. I've never had the pain with my neuropathy but do have the numbness. I posted my neuropathy journey in Member Neuropathy Journey Stories: What's Yours? discussion here - https://connect.mayoclinic.org/comment/310341/
I think exercise and staying active is part of helping a person with their new "normal" when they have neuropathy. It's good that you are able to stay active.
Have you tried any alternative therapies, treatments or supplements to see if they help some?
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Yes, upon advice of my neurologist, i take alpha lipoic acid 600mg 2/day, tumeric 1500mg 2/day. I'm not really sure that it helps but it's not that expensive and i'm willing to take the chance. Other than that, i just try to stay as active as possible. We have a chiropractor in town that advertises that he can cure pn but i think that is just to harvest $$.