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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@1puttman

HI !! I post as iputtman. I am an 81 year old male from Burlington, NC and have had ideopathic PN for about i5 years. I am pretty much past the pain and tingling but numbness continues and progresses. I play golf about 3 times per week and my balance has been significantly becoming worse. I have visited a neurologist at Duke University and have had several tests but nothing seems to be able to reverse or slow down the malady. What a truly EVIL disease !!

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John, Volunteer Mentor | @johnbishop | Jan 25, 2022

Welcome @1puttman, I also have idiopathic small fiber PN. It started in my toes in my 50's as near as I can remember and gradually worked it's way up to just below the knees before I bothered getting a diagnosis. You are right. It is a truly evil disease. I've never had the pain with my neuropathy but do have the numbness. I posted my neuropathy journey in Member Neuropathy Journey Stories: What's Yours? discussion here - https://connect.mayoclinic.org/comment/310341/

I think exercise and staying active is part of helping a person with their new "normal" when they have neuropathy. It's good that you are able to stay active.

Have you tried any alternative therapies, treatments or supplements to see if they help some?

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