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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 5 hours ago | Replies (7051)Comment receiving replies
@irr4et Hi Terrie, welcome. I'm certainly glad you are still living in 2022. You explain a pretty bumpy road that has not been easy. I'm sure being on Connect will help you learn from others, and find support along your continued journey.
A lot of what you mention lines up with a chronic pain condition called Central Sensitization Syndrome (CSS). Are you familiar with CSS? Your fibromyalgia, sensitivity to cold, an increase in nerve pain all these years later, really does line up with this condition. CSS is an overactive central nervous system, or as you state, angry CNS. Great way to describe it (I've got an angry one too).
Here is a video presentation by Dr. Sletten from the Mayo Clinic. You may find it interesting, and maybe even resonate with much of what he explains.
Terrie, how you are currently managing your pain, beyond Lyrica? What distracts you from pain and makes you laugh? Do you have an exercise regime?
Replies to "@irr4et Hi Terrie, welcome. I'm certainly glad you are still living in 2022. You explain a..."
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I am sad to report that I have lost my joy in life but glad to report I have much joy in my faith. Yes I do have very bad CSS and Dysautonomia. Adrenal fatigue also - my BP will not stay up so I have to take Florinef. I live alone in Fl bc my husband is up north and not retired yet. My little grand daughters make me laugh. I walk a lot outdoors when the weather is sunny. I used to do light hand weights and leg press machine but now that makes me flare. I do stretch at home but that increases my pain too. Dental cleanings mean huge flare next two or three days. I do have Ketamine sublingual melts - it only takes 1/3rd to help reduce pain but it’s psychoactive and I must have someone at home with me. That means I have to hire someone. Ketamine does not help me go to sleep. I have a ? - Does a Whole Body Vibration Plate help Fibro pain?