@debmitchell101614 thank you for sharing. My experiences have been remarkably similar to yours. My struggle for answers has been unsuccessful. I feel like I am fighting on my own most of of the time, as my neurologist is not invested in my situation. You mentioned that the docs say there’s a problem with your reflexes. Are they hyper- or hypo-reactive? Mine are overreactive, which is troubling. However I have had cervical spine issues for quite a long time and I believe this could contribute. At times I’m convinced I have MS although MRI said I don’t. I’ve asked my MD to do lumbar puncture, which he didn’t choose to do. I may have to insist although I’m not sure if one year post it would be as useful now. At times I am very fearful of ALS also, which an EMG did rule out but I now worry that it may have been done too early. They said my EMG indicated pinched nerve root at S1 and are trying to attribute my many and varied symptoms to that. I’m very doubtful as I’ve had back problems for years and just overnight developed these other symptoms. I have strange sensations, twitching and spasms. This has been the worst year of my life, and it should have been the best. It does help to read others’ stories. Very best wishes for you!