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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27, 2024 | Replies (468)
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@juneh

Hi Everyone, I have started reading your posts and feel so much better to know that what I'm experiencing in terms of ups and downs with PMR and prednisone are not unusual I was diagnosed in June and started taking prednisone in Sept. My doctor started me slow and ramped up in hopes that I wouldn't need 15 or higher mg. I ended up on 15 before the holidays and 20mg after. I ramped down from 20mg to 15mg 2 weeks ago and started have a flare up. It's better but not gone. I'm trying to decide if I should ramp up to 16 for a couple of weeks. Any advice? BTW...20mg caused me a number of problems and didn't really improve my situation much. I've never been on a blog before. I agree that just venting helps!

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Replies to "Hi Everyone, I have started reading your posts and feel so much better to know that..."
John, Volunteer Mentor | @johnbishop | Jan 24, 2022

Welcome June @juneh, You are not alone. I think all of us with PMR have had our ups and downs with flare ups, especially when we are first diagnosed. What helped me a lot with my first occurrence of PMR was keeping a daily log of how I felt (pain from 1 to 10, with 10 the worst) and what dose I was taking that day. Then if it was the day I planned to taper down, if I was at a 1 or 2 and not feeling too bad, I would go to the next lower dose.

Do you keep a daily log of how much pain you feel (scale of 1 to 10) and your current dose of prednisone?

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