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Sphincter of Oddi Dysfunction: What helps you?

Digestive Health | Last Active: Jun 18 1:04am | Replies (35)

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@jordi2002

I am glad this works for you! But not everyone can afford that type of treatment and some institutions in some states do not offer it at all! I will be 20 next month, I have had SOD for 6 years, since I got my last round of the Gardisil/HPV vaccines. These have ruined my life in many ways and I can no longer function. All Dr's in Oklahoma just tell me to go out of state for help since they are not willing to do the ERCP. They don't even believe I have it because I have type III. I was misdiagnosed for having IBS and none of those medications worked. I've been on many medications for the issue. All the ones on the SOD list either didn't work for me or are just now starting to wear off because my SOD is worsening. I've tried the medical/medince route and its not working, they suggest pain management when studies have shown pain medications make the symptoms worse. They of course also said it was stress and started talking about the mental aspects of it. While those can affect SOD it is not the ONLY cause and effect trigger for SOD and it won't just magically go away with mumbo jumbo pretend the pains not there meditation therapy. I've dropped 20 pounds in 2 months and can hardly eat or drink. The first time when all this started I was 90 pounds. I want to know why Drs are not educated with this issue because I hear about many girls in my age range having this all the time! Why is this not a bigger issue to Drs!? People who vomit almost weekly and cannot eat or drink, they get malnurished and dehydrated but they still brush you off because you are too of complex case. IJUST WANT/NEED HELP!!!

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Replies to "I am glad this works for you! But not everyone can afford that type of treatment..."

I found Dr. Nusrat over 4 years ago after suffering for 16 years. He specializes and teaches other doctors about SOD. I hope this message finds you so that you may contact him for help. He is an excellent doctor that immensely changed my life. Salman Nusrat, M.D. Gastroenterology, 3366 NW Expressway Suite 300, Okc, OK 73112, (405) 702-1300.