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Anyone else have Superior Mesenteric Artery Syndrome (SMAS)?

Digestive Health | Last Active: Sep 29 3:11am | Replies (132)
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@kjaffee

I have considered a third opinion, but am hesitant to travel. My original surgeon returned from leave and I spoke to her last week. It seems a 5/20 CT clearly showed the duodenum behind the SMA. The 11/21 CT shows the duodenum has moved, indicating malrotation. Possibility of exploratory laparoscopy. I have been told duodenum should not move. Help! I have increasing LUQ pain that may not be related.

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Replies to "I have considered a third opinion, but am hesitant to travel. My original surgeon returned from..."
Colleen Young, Connect Director | @colleenyoung | Jan 28, 2022

I can understand your reluctance to travel right now. Fingers crossed that the trend for omicron case is on the downward curve for real. It sounds like you're back in the hands of someone you trust and with whom you have good rapport. Will you schedule an exploratory laparoscopy?

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kjaffee | @kjaffee | Mar 15, 2022

Update on my quest for diagnosis. Subsequent CTs have shown that I do not have SMA Syndrome. Apparently I have duodenal malrotation. Does anyone know anything about that? I have a super mobile duodenum. I have now been diagnosed with esophageal dysmotility for which I have upcoming tests and consult with ENT and speech therapy. I am on a course of Flagyl for SIBO, another new diagnosis. If the Flagyl does not improve my symptoms a diagnostic laparoscopy may be in the near future.

Does anyone have any input for me? I am overwhelmed with diagnoses (also Zenker's diverticulum and hiatal hernia. I feel like a mess. I don't any longer understand how to think of my own health. Plus pain in my left upper quadrant is becoming more pronounced and no one can tell me why.

Many questions. No answers yet.

??????

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