@SusanEllen66 I, too had a bad reaction to the IV steroids when i was being given cytoxan. No one told me to avoid all citrus and tomatoes for 48 hours. I did so much better once i cut those out!

Hi Susan, how have you been?I also was diagnosed with PAN with a biopsy. My symptoms are the redness on my skin (livedo reticularis) & numbness on left pinky. The redness has spread I believe it was in 2019 that I got more redness that spread to my stomach and top of feet & top of chest. I am not on any medication I’m trying to do things naturally but unfortunately I’m having some weird symptoms since 2020 where I feel dizzy wake up from my sleep just having an ill feeling like I may pass out and also I have a constant tightness on my left chest area. I don’t know if the other symptoms are connected to PAN since it’s a rare disease and not well known about. My primary doctor thinks it’s anxiety but my specialist thinks it’s PAN and urges me to be on prescription. Does anyone else here have similar symptoms as I do?