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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)
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@microbe1943

Thank you. Yes I have good support. Your advice is well taken!! I would feel better if my CGA were not 5727. I know PPIS and Ckd Cause elevation but I doubt 5700 width. I was a MED TECK and hospital chemist for a long time so that background is also in play! And I had stage Iv pancreatic cancer 6 years ago and was not expected to live 2 months. So taking a breath is good advice. There is a lot of history and training ti override to do this. I’m mostly successful but I’ve bee sick fir months. It’s not nothing. I know that! Thank yiu for offering good counsel!!!!

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Replies to "Thank you. Yes I have good support. Your advice is well taken!! I would feel better..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 24, 2022

Hello @microbe1943

I surely understand your concern. I would feel the same way, no doubt. I've had three surgeries for NETs in the upper digestive tract and I do realize the value of some of those numbers combined with the symptoms. Whenever I'm faced with a new lesion, my thoughts definitely travel in the same direction that yours are right now. However, as much as possible, I use this place, Connect, to face my fears and try to put them in a proper perspective.

Keep posting here on Connect, keep breathing, and do whatever you can to distract yourself until your scans on the 9th. My thoughts are with you.

Will you post again and let me know how you are feeling?

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