@joannemm30809 Yes, I will keep in touch. I'm sorry you experience such a sick feeling and sensory shifts. Keep in mind you do not need to feel pain in order to attend Mayo's rehab center. Many people are in your same boat there. Keep your chin up. Will you keep reach out if you need anything?

@joannemm30809 Hey Joanne, how are things going this week?

@joannemm30809 and all...Hello, Joanne. I live in Jacksonville, Fl, and have been going to Mayo Florida for multiple consults and multiple diagnoses and treatments regularly since 2019, and was one of the first patients when they first opened in 1986? I was misdiagnosed by local doctors over 12 years with MS, finally got quite ill, and was getting no treatment or help. So, I was sobbing when I called and asked Mayo for help. Saw the MS neurologist in April, and so began my saga of healings.

In 2019 I had my first visit to neurology, the first of many wonderful, informative, and healing visits at Mayo Fl. I've seen several neurologists. What are the issues taking you to Mayo neurology? I've seen one for seizures, for MS, for Parkinson's, my son sees a movement specialist for Dystonia and botox injections, I also see a rheumatologist for Sarcoidosis and Vasculitis. and other specialists for other issues. One neurologist has a name beginning with 'W' and it sounds like 'S'. Could be yours?

Have you received a schedule from the clinic? You also have access to your patient portal with a plethora of information that will be oh, so helpful all your time with Mayo care. It's truly wonderful and easy to understand and use. @colleenyoung is the Connect director and will be a great help. She can put you in touch with others who go to Mayo Florida.

Please contact me with a bit of information so I can help you. This is an area in which I may have good information for you.
Blessings as you begin this exciting journey to answers and hopefully healing/treatment. elizabeth