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Autoimmune encephalopathy anyone?

Autoimmune Diseases | Last Active: Feb 9, 2022 | Replies (55)
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@mermaid7272

I FINALLY got a IVIG infusion appointment for encecephlogy (or however one spells it!). My symptoms are back & I hope I can hold out for yet another week before I have total breakdown & end up in the E.R. full of Covid patients..

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Replies to "I FINALLY got a IVIG infusion appointment for encecephlogy (or however one spells it!). My symptoms..."
Becky, Volunteer Mentor | @becsbuddy | Jan 23, 2022

@mermaid7272 I’m so glad you finally have an appointment. It’s for next week, right. What day? You CAN hold out. Do you have any near-by friends? Ask one of them to quietly sit with you, just so that you know that you’re not alone. I did this several times before i was diagnosed and it helped. I was finally diagnosed and started on prednisone.
Does your PCP know about what you are going through? If not, please tell them! He/she may want you to stay in the hospital for a few days before the MRI. It is safe, nurses are great at infection control! That’s a much better option than going to the ER. Do you live alone? If so, do you have a friend or neighbor who can check in on you?

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