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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: May 18 6:58pm | Replies (554)Comment receiving replies
My large nerves are damaged from Polyarthritis Nodosa (Vasculitis) I have had since 2015.
The worst part of it for me is the awful pain, hot/cold feet and hands etc. I have mostly taken the grin and bear it approach because I cannot tolerate gabapentin etc. I use the topical lotion Aspercreme, or a magnesium lotion/oil. Those products are available in drug stores, and Amazon. I would much rather use a topical medication and I find it works well for me.
Replies to "My large nerves are damaged from Polyarthritis Nodosa (Vasculitis) I have had since 2015. The worst..."
I tried all the topicals, but Horse Liniment works best of all
Madge
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Hello @SusanEllen66, I know the hot/cold feeling in the hands and feet can be pretty awful at times. It's good to know that you found some topicials that provide a little relief. The Vasculitis Foundation has some education videos on PAN on their website -- https://www.vasculitisfoundation.org/education/forms/polyarteritis-nodosa/. One in particular that might be helpful is The VF Road Map to Wellness Webinar: Focus on Polyarteritis Nodosa -- https://youtu.be/zKssb0npKjs
Have you done any research to find other treatments that may help?