So a quick update - we did a CT because insurance would not cover the Pet Ct until we found something that could be thymic hyperplasia or something else, but usually patients tend to get that in their 20s not 40s which I am. Has anyone heard of this? I did do a Pet-CT yesterday. Waiting for results never seems to get easier. We keep finding things that sit outside of Lynch but then again not as much is known about the PMS2 mutation exon 9 and 10 is one of the newer ones I think. This is not originally why we were going to do the Pet but that is the only way we got it approved so now I try to wait patiently (which is not my strong suit).