Connect
← Return to PMR Dosages and Managing Symptoms
Discussion
PMR Dosages and Managing Symptoms
Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)Comment receiving replies
That is horrifying! I can't believe you lasted that long! Yes it must have been agony. I was for just 2 weeks in agony without any meds until I could finally get into to see my primary Dr. . How did you last for 5 months?!!! My doctor gave me one of these Prednisone 6 day packs that starts out high dosage and winds down to 4 mg over 6 days. (I don't know why- obviously not the right treatment). So I was back to being in agony again the day after the pills ran out until i could finally get in to see a Rheumatologist 1 week later. Weren't the evenings and mornings just dreadful? - I feared them each evening and stayed up very late into the early morning just to avoid going to sleep.
Replies to "That is horrifying! I can't believe you lasted that long! Yes it must have been agony...."
Connect
I was barely clinging on. I also dreaded going to bed because, although the nights were awake every couple of hours in pain and having to fight my way outta bed to use the bathroom, the mornings were excruciating. I can't imagine getting your little pack of Prednisone and then going back to the pain. I don't know how I did 5 months and worked for 3 of them (work from home). I was getting up at 5 to take Tylenol and Ibuprofen and CBD oil to be "ok" to start work at 8. Thank you for sharing your story. Do you have side effects from the dose you're on? I would wager any side effects far outway the excrutiating pain. Also I was wondering if your symptoms began in close relation to your Covid jabs if you had them, because mine did. This is not a disease that's genetic in my family.