Statin discontinued due to neuropathy. What are some alternatives?
I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?
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Welcome @donclemdds, It sounds like you have a similar plan to what I'm trying. That's really good advice to work with your PCP on a plan. My PCP also wants me to go on a statin due to my numbers even thought I've been working on weight loss with intermittent fasting, low carb and healthy fat diet plus 30 to 45 minute exercise daily also. I have an appointment in a couple of weeks and I'm sure we will have the conversation again but I'm not taking a statin at this point. My latest Triglicerides were 77, HDL 59, LDL 107, Non HDL-c 122. I also had them do a fasting insulin test and it was 7.4 and there's debate on what is good for that. The only positive thing I know is losing the weight will help my overall health.
I'm more worried about making my small fiber PN worse with the statins than I am about the possible effects of not being on a statin to lower my cholesterol when that has been shown that diet and exercise also works to lower your numbers.
Because of the side effects I get from statins like pain in the calf muscles, I reduced the Rosuvastatin to 5mg every 4th day. My cardiologist insisted I take it every day. But, he's not the one experiencing the pain. I had lab work done yesterday and I see the PCP in 2 weeks for my annual physical. We'll see what my cholesterol is then. I don't see the cardiologist for about 3 months.
I used to be on statins and every year I had to change brands because of body aches. I refused to take them when my cardiologist tried to prescribe them again. I ended up on Metoprolol and ezetimibe (one is for cholesterol and one is for blood pressure (I forget which)).
I had good luck with the FODMAP diet. Lost 60+ lbs over 6-9 months. Still on it somewhat and haven’t put any weight back on.
I started statins in 1986 when my doctor detected cholesterol level of 380. Tried every statin and always got to level 2 pain. My current cardiologist was involved in the Repatha study and eventual prescribed it for me. Self injector, once every two weeks. After my first two months and a test by my cardiologist, I received a note from his nurse with a little heart sticker - cholesterol level below one hundred. Love it. I did talk to the cardiologist about my DPN and he researched the study findings and could not find any info re adverse effects. Just have to remember that DPN is a one in 300,000 disease - perhaps none had high cholesterol.
Great. Thanks for sharing Repatha.
Was very difficult to get Medicare/TFL to cover Repatha. Cardiologist worked hard, listing 20 years of trouble with oral statins.
My dr wants me to try repatha an injection instead of statin I’ve developed terrible peripheral neuropathy and nit sure if it’s the statin but the booster shot made it so much worse sorry I ever took it I have tingling and pins and needles throughout my body and numbness in feet I think vaccine caused it ir made it worse
Good to know. Thanks for sharing.
Did you have any side effects muscle pain neuropathy as i have with livalo a statin